My child Divyansh is 2yrs10 mnths old. Still he is only 9 kgs. He was born prematurely(8th mnth)with a twin brother.His brother survived for only two mnths as he had a hole in the heart.Divyansh also fell sick when he was only three mnths old. On diagnosis it was found that he had low electrolytes and increased urea.he was admitted for a mnth.but since now he has low electrolytes level and high urea(approx 100). doctor told us that it is Barter's Syndrome and its treatment is not known.divyansh is now being treated from a Nephrologist who is mainly concerned about high K(potassium) level. The treatment may go for 5 to 10 yrs.plz guide me